Monday, March 30, 2009
playing doctor
ive been in the hospital a few times for platelet and blood transfusions this week. hayden knows i go to the doctor and make hospital visits. he doesnt really "get it', which is good...but i dont hide it from him either. i sort of "sugar coat" my chemo treatments. hes been in the office, and hes seen the chemo room; tho he has never seen me hooked up to anything. i introduced him to the nurses and they give him lots of atttention and donuts, etcetera. i tell him that i go there for medicine, and i watch tv and talk to my friends. so basicaly...he thinks chemo is fun. i want him to know where i go when i am away from him; but i dont want him to be scared of it either.
anyway...today i was listening to him pretend play. first he was playing with his diego figure and pretending to have a conversation with baby jaguar. this is what he had diego saying to baby jaguar...
"im going to make you better so youre not sick anymore. you have to take benadryl and tylenol, and also have your treatment 5 times today."
(hayden has an asthma treatment twice a day)
but thats not what i found interesting. this is what impressed me.
he was playing "doctor" with his doctor kit, and pretending that the pillow was his patient. he says to the pillow...
"im going to give you a shot now, because you have low blood platelets."
ok... i realize that neither of these play examples are that big of a deal. BUT it does show that kids pay attention. my platelets have been a big issue this week. i was in the hospital twice because of them. but we have never gotten that in detail with hayden about it. all we told him, was i needed medicine in the hospital.
so, im pretty impressed that my 4 year old is picking up on some of these things. maybe hell become an oncologist one day, and find a cure for cancer! who knows!?!?
Monday, March 23, 2009
are you a friend of dorothy?
"i was at the gym and i was listening to this woman speaking behind me and
when i turned and looked, it was this gay guy. Now do you remember we talked
about how gay guys talk? Why do they talk like that? they dont learn it from
their parents. and they dont learn it in school. its not a regional dialect.
they usually start young, so its not from hanging with a bunch of quee...gay
people...what are your thoughts? can you blog about that?"
Friday, March 20, 2009
FUCK YOU, CANCER!
fuck you. i hate you.
and let me just say...that i rarely..if EVER use the word hate. i have no problem with the word FUCK; but HATE is a very, very bad and dangerous word. i admittedly have lived a very charmed life. i havent had much reason to hate. but i am human, and despite my charmed life; i have had my fair share of shit too. who hasnt? and its never been from"things", but from people. who were bad. very bad. and werent honorable or deserving of me. and ya know what? i have never felt hatred towards them. and i have never said i hated them. and trust me. most people would have.
but you? yes....you, cancer!
you can hide.
in bones.
and brains,
and blood.
and lymph nodes.
but i know youre there. and i hate you.
and before i seem ungrateful...id like to state for the record...that even tho you are evil; i am still also very appreciative that you have been fair with me. so thank you for that. and im not complaining. at least not about myself.
...because i have met a lot of great people on my cancer journey. people who i am honored to call "friends." and you are taking them from me! and from their loved ones. from their loving spouses. and their young children. or from their parents. or grandchildren.
and you have obviously not gotten to know them as i have gotten to know them. because if you had...you wouldnt be doing what youre doing. plain and simple.
so today, at the same time when i was happily getting great news about my improving health, a friend of mine wasnt getting that same news. and when i was on facebook tonite "celebrating" and sharing my good news with my friends; my phone rang. i smiled thinking it was someone who was calling to share in the excitement. but as soon as i picked up the phone and heard my friends husband on the other end of the line....i knew. i knew it before he even got past one word, which was my name. i cried. as i have done many times before.
only this is a little bit different. i met her online. she wanted information on a clinical trial i was in. she told me i was her inspiration and her hope. she got into the trial. we met her and her husband in LA, as this is where the trial was. i live in michigan. she in ohio and florida. instant bond. the nicest people. we kept in contact...even after the trial medication stopped working for both of us. we planned on visiting them and staying with them in naples this winter. it didnt happen. i couldnt travel with my crazy chemo schedule. she was in the hospital for a month or so.
i talked to her last week. at first i was nervous, because she had hospice there, and i didnt know what to expect. but she sounded great! and i was encouraged that this was just another bump in the road for her. my last conversation with her ended in me saying "i love you, and you better be ok, because i will freak out if youre not." she responded with, "im still fighting, and you will continue to do so too. for dan and hayden."
i had been thinking of her a lot, and wanted to call her. but i didnt, because i didnt want to bother her. it takes a lot of energy to talk to people when youre sick. i wanted her to have peace and to get stronger. but this afternoon during my chemo treatment; i thought about her. and i decided i was going to call her to check in. i didnt have the chance. she died around the same time i was thinking about her. coincidence? i dont think so. i really dont. nope. nada. doesnt happen that way.
so why do i find solace through my tears? well....her husband had beautiful things to say. he sounded so at peace with it. he is at peace with it. she wasnt in pain and never was. they talked. nothing left unsaid. her wishes were honored. he did everything for her the way she wanted it to be done. he is celebrating her life and all of the beauty and joy they had. they both appreciated their very happy and fruitful life. she died in peace. kind of beautiful actually.
but let me tell you, cancer. i still hate you. im not as nice as my friends husband. and even tho i know she died in a very compassionate way...im still pissed. im pissed that you took a beautiful friend away. im pissed that you have taken many of my friends away. im pissed that you interfere with so much in peoples lives. im just....well....im just pissed!
and by nature, i am not a fighter. im very into love and world peace. but with you...i draw the line. and i will fight you. because this time; you picked the wrong cancer bitch to fuck with.
Thursday, March 19, 2009
my morning laugh
me: "hayen...where did your pants go?"
hayden: "i took them off because i peed in them"
me: "when did you do that? in the middle of the night?"
hayden: "no, not really in the middle of the night. it was more like on the side"
Wednesday, March 18, 2009
the time machine
tonite at bed time:
hayden: "mommie...when am i gonna be 3?"
me: "you already were 3. youll never be three again...now youre 4"
hayden: "but i can be 3 again."
me: "really? how?"
hayden: "its a secret. i cant tell you. but i will if you dont tell anyone"
me : "of course im not going to tell anyone"
(for the storys sake....lets just say the blogosphere doesnt count)hayden: "you can make a machine. and when you go in it, it will take you back to being zero again. and then you can be 3 again. but you can only do it once, because after that it catches on fire!"
Tuesday, March 17, 2009
dora the whora?
anyway.....a while back, diane sent me an article about how mattel and nickelodeon were coming out with a new "tween" dora. a more grown up version for the "high school musical" and "hannah montana" crowd.
this is what my response back to her was:
omg! awesome.
they should give her implants and hair extensions. she
should wear short skirts and belly shirts. then they should have her getting out of cars and flash her coochie with no underwear on. oh...she should take nude pics to post on the internet and of course make a sex tape. miley and paris...watch out! theres a new hoochie mama in town. dora the whora!
well...diane thought that was really funny. i think its kinda funny too. but moms all over the country? they didnt find it funny at all. they wrote letters and e mailed and posted things all over the internet about how it wasnt right to make a wholesome character like dora into a sexy "tween" figure. blah blah blah. first of all...ill never understand how these people have the time to pursue formal complaints about things like this. secondly...ill never understand why they care. seriously.....my tv has over 500 or so channels. dontcha think they can find something else for their kid to watch? but as always, people like to moan and bitch and complain. and meanwhile...its probably their church going husbands (just sayin!) who are locked in the bathroom with magazine pics of the new "tween" dora.
whatever....i digress.
so....they just released the new "tween" dora.
this is her:
this is what moms all around the country got all steamed over! crazy! she looks pretty wholesome to me. (personally...i liked my idea and description better.) and im guessing, that along with their perverted husbands, that their sweet, innocent "tween" daughters dress way more provocatively than dora. (just sayin!)
and dora is just hanging out in the jungle, speaking spanish, going on adventures and climbing mountains. and what are their perfect angelic "tween" daughters doing? well....theyre going on adventures too. but it most likely involves boys. and spanish? no. more like spanish fly. and these boys? theyre the ones hanging out in your daughters jungle, and climbing her mountains. (just sayin!)
so. the moral of the story? who knows. i have a hard time staying with a single thought process. i guess dora was on my mind because the image was just released, and its being discussed all over the internet and tv. but i do have to giggle a bit. i wish i had the time to freak out about something so trivial and inconsequential. i think if these moms stopped caring about stupid shit, like doras new wardrobe, than maybe their "tween" daughters wouldnt be "tween moms" themselves.
yeah.
just sayin.
Tuesday, March 10, 2009
quote of the day
Friday, March 6, 2009
to my baby...on his 4th birthday

every year i write hayden a letter on his birthday. he was 6 weeks old when i was diagnosed with cancer. at that point...i wasnt sure how long id be around. so when i saw him turn 1, i wrote the first letter, to let him know how happy i was to celebrate his birthday with him. and ive continued to write these letters. this is my fourth one! and honestly...i do not share those letters with anyone. they are put in a box...a different box for each year. they are for hayden. but for some strange reason...i feel the need to post this letter. no idea why! but when i feel strongly about something, i do it. so here it goes....
Thursday, March 5, 2009
channeling pee wee herman
pee wee herman's scooterhayden's scooter
*he decorated it himself. and he doesnt know who pee-wee herman is.